top of page

I am defined by my chronic illness - poem


Jenny is a slim white woman with short dark hair sitting on the sofa laughing. She is wearing a white t-shirt with black text on the chest that reads: "not fine but good enough I guess".

I am defined by my chronic illness,

Don't panic, I know.

That's seen as being negative,

You assume I feel low.


But that's not the case,

Not always at least.

I've been shaped and altered,

By this absence of peace.


This is my life,

It's all that I know.

What am I up to?

This is all I can show.


I can't separate out,

This illness and me.

I don't feel a need to,

It's complex you see.


I will not be grateful,

For the limitations it sets.

The pain I endure,

Or the toll of its threats.


It's not the total sum,

Of who I could be.

But it's a defining feature,

Of my life to me.


That is allowed,

I make the choice.

Don't get to choose much,

But I still have a voice.


In what I keep hidden,

And what I do not.

This illness of mine,

It's part of the plot.


It's part of my story,

It leads the way.

Not all good or bad,

At the end of the day.


I am a person,

I will not forget.

But I am a sick person,

Are you uncomfortable yet?



This Thing They Call Recovery logo featured on multicoloured background
bottom of page